Tomorrow

We are still on the schedule for tomorrow morning. His mom and dad are nervous wrecks, but Lalo seems pretty relaxed and he rested up lots today in preparation. The surgery is expected to last about 2 hrs. We are on the OR schedule for 8:45 am, but because this is a children's trauma hospital, we would get bumped for any other emergency surgeries. Our surgeon told me today that the first 6-10 hrs will be the most critical and the after the first 24 we should have a better idea on how well he was able to handle the repair. The nicu attending said she would venture a guess that he will be pretty sick for about a week post-op. Overall, this will be a very intense few days for little Lalo (and us) so please keep praying and sending good vibes for his strength and health.

His has a had a few other minor complications in the last few days that we forgot to mention with the excitement of surgery. Sarah found a bedsore on the back of little Lalo's head on Tuesday. It is only the last few days that they have been turning him completely on his side to help with the lung issue the other day. While he was really sick they were not moving him at all and this is one of the unfortunate complications. So the little guy got to mingle with yet another set of doctors from the wound care department. Also, this morning the nurse saw tgat the broviac catheter (iv line) in Lalo's chest had broken thru the skin close to his neck. This is a large iv line that is put in close under his skin. Because, it is so thick and his skin is thin the line became exposed. Before beginning surgery tomorrow they will replace this in a different location on his neck. Poor thing will have yet another procedure. We also noticed some uncontrollable trembling today, which was described as either a neurological reaction or a reaction to the pain medications he is on. As his nurse said today, he seems to have had a bit of a dark cloud around him. Let's hope that changes before the morning.

In better news, the attending took some time to explain the head ultrasound to me. The blood that was present on the MRI that they were watching (because it had increased from the last ct scan) had decreased and the pockets of spinal fluid that are normally in the brain had cleared out a bit indicating that the bleeding wasn't causing further issues by blocking the circulation of that fluid. Also, the nurse last night decided to let him take over his temperature control. She turned the warmer off on his bed and put him in a tshirt and swaddled him in blankets. So very cute! Here's a picture.

That's all for now - off to drink a glass of wine and try to get some sleep tonight!

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