Today has been another eventful day for Lalo so far. They have removed his arterial (art) line (a line used to give him meds and to take blood) from his right hand. Now he only has a Hickman line (a large line in his chest that runs to his neck and then sits above his heart) and various sensors. The art line has a sensor that watched his blood pressure and now they will have to manually take it, scary. But this means that we are able to HOLD HIM!!! Excited much? Sarah got to hold him today (41 days after he was born!! picture to follow), but I'm back to work so I have to wait until I can make it back there.
They also decided to start feeding him. They have been able to hear GI sounds, which is a very good sign that his intestines are starting to work. We can imagine that his is hungry!!
But around 8:30 pm the phone rings with Johns Hopkins on the caller id...Unfortunately, about an hour after starting the feeds they noticed puss around his Hickman line. This is unrelated, but they stopped feeds while they addressed the new issue and started him on an antibiotic. Surgery came to investigate and decided that it looked okay. However, an hour later he spiked a fever and they sent blood cultures and added another antibiotic. The cultures take up to 48 hrs to fully develop, but one of the factors already came back elevated, which indicates his body is working hard to fight off something. They will talk tomorrow about whether to remove that line or not. Unfortunately, that is the main access they have at this point for nutrition and medications, so that would definitely be a problem. Just when we think we are completely moving forward, we manage to find ourselves yet another setback! Poor Lalito has a had a lot of hard work this weekend, but pray he has some more strength stored up to fight off this infection.
But around 8:30 pm the phone rings with Johns Hopkins on the caller id...Unfortunately, about an hour after starting the feeds they noticed puss around his Hickman line. This is unrelated, but they stopped feeds while they addressed the new issue and started him on an antibiotic. Surgery came to investigate and decided that it looked okay. However, an hour later he spiked a fever and they sent blood cultures and added another antibiotic. The cultures take up to 48 hrs to fully develop, but one of the factors already came back elevated, which indicates his body is working hard to fight off something. They will talk tomorrow about whether to remove that line or not. Unfortunately, that is the main access they have at this point for nutrition and medications, so that would definitely be a problem. Just when we think we are completely moving forward, we manage to find ourselves yet another setback! Poor Lalito has a had a lot of hard work this weekend, but pray he has some more strength stored up to fight off this infection.
3 comments:
Hang in there Baca-Asher Family! Lots of thoughts and prayers are still being sent your way. Love you all - Berna
ups and downs... i'm sorry to hear this. hopefully thyey treat it fast and get him some food. - katie
I really hope that the infection is going/gone by now.
So happy to hear about the arterial line being out, and feeds starting.
Aunt Kirsten
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