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>> He's one month old today! To celebrate he snuck out of picu at 4 in the morning last night...and moved to the nicu. It was not due to a change in L's condition, but a need for bed space in the picu. So far the switch seems good. It's much quieter down here and not such bright lights. Plus, it can't hurt to have a new group of drs and nurses giving their insight. He likes to make as many friends as possible from what we've seen so far.
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>> Overall, he seems to be hanging pretty steady. They did say he desaturated (low heart rate and oxygen levels) at one point last night so they are running blood and urine cultures to rule out an infection. Pray that we are not dealing with another infection. They are also running tests to see if they need to increase his phenobarb (sp?). This was being given to prevent seizures associated with the brain bleed. Apparently the nicu resident saw him having some signs of a seizure this morning - rolling his eyes back and pushing his arms out in a certain way. He is also getting head ultrasounds to follow the swelling in his head. I saw the neurosurgeon yesterday and he said it was slightly increased on the MRI from the last CT scan so they would just be watching it. We are hopeful that this will not cause us more issues.
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>> He was super alert again this morning, which is great. The nicu nurse had me clean his eyes and lips, and take his temp. I guess I looked surprised, so she said "what? They didn't put you to work upstairs?". Love it!
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>> Still no decision on when surgery will be. Nurse yesterday said she heard rumors of Tuesday. His neurosurgeon said closer to 4 wks or end of oct. His pediatric surgeon had said the end of this wk (as in today) the last time I spoke to him. The nicu resident just told me she heard Wednesday, Thursday or Friday of next week. So place your votes now! When do you think it will be? Winner gets lunch from the hopkins cafeteria :-)
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>> Sent from my iPhone
2 comments:
i get that a lot too. everyone saying something different. thats why we need to be advocates. i hear the docs say one thing and then the orders get changed w/ chage of shift. i am always reminding them of what the previous docs said. makes you wonder who is right...
he is looking really good, looks like he got rid of that water weight. he is pretty darn cute. i hope he does not have seizures. you guys have a lot to worry about. i am so sorry.
fyi - jack de-sats on a regular basis. they do not seem to worry too much, but i do. they do not know why he does this. it is usually when he is upset. it is called a brady or something - he "bradys down." but goes back up usually on his own but it is frightening. so i can understand the concern.
thinking of you and praying for you.
love,
katie
I'm so glad to hear they moved Lalo to the NICU. It should be way more comfortable for you there. Keeping fingers crossed for surgery soon.
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