Overdue post

Sorry for the long delay since our last post.  Things have been busy!

The GI doctor was supposed to attempt the GJ this past Monday but they had to reschedule it so now we are waiting a few more weeks.  His vomiting is still awful (maybe one day I won't have to post that anymore...), but he has been doing okay with weight gain - most recent weigh-in was just over 18 lbs!

We are getting ready to add an occupational therapist from the county to Lalo's schedule.  She will help him work on fine motor skills, particularly with his right side, and positive oral skills since he's still not eating.  First on her agenda is ordering him a splint for his right hand.  Although he has greatly improved, the splint will force him to keep his hand open for portions of the day.  His frequently holds this hand in a tight fist because of the stroke and this will help prevent muscle issues and promote him to use that hand more. 

We also added a more holistic physical therapist that is part of the therapy we are allowed through our insurance plan.  This therapist includes a method known as craniosacral therapy.  It also incorporates some tradional physical therapy and a few other things.  The craniosacral therapy should have positive results on his digestive system as well.  Fingers crossed!

We just had a helmet appointment today.  He has had good growth over the  last month and if he continues we may be able to kiss it goodbye in just another month or two.  That will be an awesome day!

We have also weaned him off of his seizure medication as of today!  One more med down!  We now only have 2 meds and a multivitamin - not bad.  We also added a probiotic (so 3 meds I guess) yesterday that our pharmacist recommended.  He said it may help with the reflux, as a lack of good bacteria in the stomach may cause or increase digestive issues.  Again, fingers crossed!

Our Easter was wonderful!  It was our first holiday all together and we got to celebrate with both of our families as well.  Caleb loved his basket and all the candy.  He now has a major M&M habit.  One of these days I will get around to downloading some pictures from our actual camera.  There are some great pictures on there, but that still sits on my to-do list :-)

Almost forgot...Lalo did his first roll last Tuesday!!  He rolled from his belly to his back.  This is big stuff!   Meanwhile, Caleb has started refusing to sit in his high chair to eat.  That would be okay if we could just convince him he is not supposed to stand/sway/bounce on chairs :-) 

Hope everyone is well!