Ugh

We call Lalo's nurse every night around 9 to see how his evening is going. You start to panic when they transfer you to his doctor instead of the nurse. He started leaking from surrounding his central iv line in his chest. It appears to be the lipids (part of his iv nutrition) leaking back out. They are doing an xray and surgery should be down shortly to consult. In the meantime, they had to stop all drips including his deloudid, which I'd imagine is not the preferred scenario in terms of withdrawal. We are praying that they don't need to replace the line, but we are thinking that is a likely scenario. This is why the slow progress on the feeds is so stressful. Until all of his nutrition can go into his tummy we are dependent on a big iv line. Waiting for a call back from the pediatrician or surgeon to see what the plan is...

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