Sunday, November 7, 2010

Lalo is still making slow progress. His throwing up continues to be a big issue. At least once over the weekend feeds were stopped for a short time and we are only currently up to 9 cc's. We know that feeding issues are extremely common in cdh babies, but I was secretly hoping Lalo had faced more than his fair share of struggles and that we could skip this one.

He is very close to being completely weaned from his dilaudid drip, hopefully just another day or two. It will be great to take a medication off of his list. Then we can start on some of the others...

Lalo sr. spent all day Saturday with little Lo and had a great time. It was my first day without seeing him, which off course stunk. But I can't complain because Lalo has to go most of the week while he is working. It was wonderful that they got a good chunk of time together. And I got a few things done and had some quality time with Caleb.

Hard to believe how quickly the days and weeks are passing by. Many people have been asking us how much longer Lalo will be in the hospital and we really have no idea. Whenever we push the question, we get lots of "he is in charge", "each baby is different" kind of answers. I would imagine the minimum would be several weeks or a month, but who knows how realistic that is. I'm pretty sure his eating is our ticket out of here, so keep your fingers crossed that this week will bring good things for his tummy!

Sent from my iPhone

7 comments:

Anonymous said...

What other medications is little Lalo on?

Are they using breast milk for the feeds?

HUGS for yet another struggle for you and little Lalo.

Love,
Kirsten

Anonymous said...

Have you tried crab cakes? No Maryland-born child can resist. I am sure the nurses have a supply of Old Bay on hand to move these things along....

Hang in there!
Andy, Chris, Tommy, and Kelly

Anonymous said...

Is he still getting Reglan?

Love,
Kirsten

Unknown said...

We're happy he is now "Mr.Chubbs". Baby Lalo and Mom and Dad & Caleb, Your an amazing family. May God continue to bless you. You still have the West Coast (Golden) Praying for Baby "Lo". Every morning and every evening too. Thank you for your Blogs.
We Love you, The Padilla Family

Anonymous said...

Hang in there Mr. Chubbs! We are all praying for the day you can go home to your family!

Best wishes for the whole family,
Catherine

Anonymous said...

Lalito - eat lots of yum-yums! Still praying for you every single day! Love you baby boy - Berna

Anonymous said...

i always try to think of things that could help... like is he on anti acids?? jack takes prevacid to stop him from throwing up. and i dont know if they would allow this, but at childrens they gave jack this bouncy chair. it turned him around! he was just straight up bored and didnt think there was more to life than his little glass bed. see if they can give lalo a change of scenery and something fun to do if they have not. you WILL get out of there with lalo. i know it has been so long and i am so sorry. he is making progress even though it is slow. and i got all of that "each child is different etc..." so i know what you mean. it is true though... just keep asking questions and please take breaks!! love,
katie