But the frustrating...his central line which they stopped using Wednesday night is still in!! This is super concerning because it is an unneeded infection risk and because it is sitting closer and closer to the skins surface right where the ecmo cannulas scar is at his neck. This is what happened last time when it broke through his skin right before his hernia repair. Apparently nicu and surgery have been going around in circles about taking it out. Not sure exactly why it became an issue, sounds like surgery schedule has been pretty jam packed. Which leads us to the next bad piece of news, that it has to be done in the OR. We weren't aware that that was the case until this morning. We knew the surgery team had to remove it but we thought it was simple enough that it could be done with a sterile field, bedside. Unfortunately, this most likely means he will be reintubated for the procedure :(. As of right now the plan is it will be done at 7:30 tomorrow morning. We are praying that nothing happens to bump us because we want it out now!
Other than that, they have been alternating days of weaning his deloudid and going up on his feeds. With all of the picc line attempts Lo received several extra doses of his narcotics to help keep him comfortable. So the last few days he has been pretty knocked out, which meant less opportunities to lose his lunch. I'll leave it at that - we don't want to jinx ourselves...
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2 comments:
Oh dear, dear, dear...!! Steve and I cried when we read your posts of Wed., Thurs, and Friday. You guys are too smart to have to watch how different specialists fight with each other and,as a result,little Lo is the one who suffers along with his parents. We will pray that they get their act together for all of your sakes. Give Lo our blessings and love. Aunt Judy and Uncle Steve
i think it can be done bedside sarah. speak up - tell them you want it out and you want it out NOW. if he does need to be intubated, he will be okay. it will come right out b/c he is already doing so well. i will pray for that. seriously, you just tell them what you want... go find the attending and tell them you want it it out today. the attending is supposed to be the brigde of all of the specialists... he or she needs to get them on the same page. when this type of thing happened with us (there was disagreement about when to extubate him) i called a family meeting w/ all of the people caring for jack and asked that prior to the meeting, they all got on the same page and decided on a plan of action. i am sorry you are going through this. katie
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