More tests

Lalo is still experiencing issues with throwing up.  The docs are going to preform an upper GI study today to see if there is some type of blockage.  The nurses don't think this is the issue because he doesn't have green or brown spit-up.  But at least they will be able to rule it out. 

The pain management department was consulted regarding the issues with weaning him from narcotics.  They felt it was being done too fast and made some suggestions on how to proceed that are more tailored to how Lalo has been handling the weans.  But they did not feel strongly that it was contributing to the spitting up.

They were also able to come down on Lalo's oxygen needs.  The nasal cannulas he was on before were heated, which caused condensation to build up in the tubing and every once in a while would shoot some water up his nose.  That I'm sure only added to the gagging and throwing up issue.  So the other day they made the switch from heated to regular and also came down from 2 liters to 1.  Another bonus is that the tubing is smaller so it seems more comfortable and easier to keep in the right spot.

We did get a bit of good news yesterday.  They did a repeat echo of Lalo's heart since it had been several weeks.  The last had shown his pulmonary hypertension had improved, but this one showed it is gone!  The hypertension is the common issue associated with cdh and is what made him sick enough to need to go on ecmo. Here's a good link that discusses pulmonary hypertension and cdh http://www.chw.org/display/PPF/DocID/34373/Nav/1/router.asp

Despite the issues Lalo looks good and has voiced his his concerns about coming home in time for turkey.  He said he is ready for gravy and the popes nose.

Lalo

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