The upper GI showed that the pylorus seems fine. He was able to take about 45 cc's (ounce and a half) before he refluxed and the stomach muscles/contractions seemed weak. That is not surprising since he has always been on continuos feeds and his stomach hasn't been "worked out". The next step is to put his stomach to the test and start compressing the time his feeds are given instead of just continually giving him small amounts. They may also introduce a new medicine that helps get the stomach muscles to contract. We are hoping and praying that these things help. The surgical fix to severe reflux is not exciting but if he continues not to gain weight or gets pneumonia from aspirating into his lungs it is a very real possibility.
He also had a ct scan done to make sure the plates of his head aren't fusing already. Apparently there was debate over the results, so neurosurgery was called in to evaluate. Their opinion was that the plates are not fusing and that he may need a helmet to help with the shaping. Helmet = fantastic, compared to surgery!
Our goal for the weekend is to convince little Lalo to put on some holiday pounds! Think chunky baby thoughts for us. He is 11 lbs 3 oz as of last night.
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2 comments:
11 lbs is a lot!!! that is great... i am impressed w/ that weight given his long hospital stay. and the helmet is awesome compared to surgery. i think of you guys often. - katie sherman
way to go, Lalo John! Get your helmet and get out of dodge! We love you! Nana and grandpa
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