Sunday

Still hanging out at Hopkins. Realized I haven't done an update since last week, I have been spending every spare minute researching things to help reflux and throwing up (and planning a last minute attack for Christmas shopping). Throwing up and gaining weight continues to be our big issues. Last Sunday they condensed his feeds so that he gets fed for 3 hrs straight, then 1 hr off. They also switched him to a new med and started fortifying his milk to 30 calories per ounce (it is typically about 20 cal). He didn't agree with one of these changes and got a rocky start to the week. But it seems he has gotten a little more used to them now and has stacked away a few days of good weight gain.

We haven't been able to get him to take a bottle. Hopefully this might change as his tummy starts to feel better, but for now all that really matters is reducing his throwing up. Some non-medical things that we are working on to help - infant massage (great for digestion and rehab from the stroke), keeping him at an angle when he is lying down, and trying to get him used to tummy time. If anyone has some good tips, please share. We really don't want to do the surgery, but even more important is for him to have good growth and be comfortable.

Lalo turned 3 months old on wednesday and is starting to become an old man in the nicu. Unfortunately it looks like we will be spending another holiday at Hopkins, but every day we are getting closer to home. We can't wait for the day we are able to have our boys under the same roof.

Sent from my iPhone