Lalito continues doing well and has only sporadically gotten sick over the last week. He has been gaining great weight too! Tonight our nurse said he is 13 lbs 4 oz! They continue to gradually wean narcotics - alternating between methadone and valium - and increase his feeds - I believe we are up to 2 hrs at 50 cc's and 1 hr off. He has tolerated everything really well other than a few outfit changes here and there. No luck on the bottle at all, but after all he has been through you can't really blame him.
But the biggest news...Lalo has a move scheduled for tomorrow! He is headed to a subacute care hospital in DC. While it isn't much closer than Hopkins, it is super close to where Lalo sr. works so he should have a lot more time to see him during the week, which is great. It is scary to think about moving because Hopkins is all we ever known for Lalito, but it is also very exciting because it is a big step closer to home! Thank you to all the doctors, nurses, respiratory therapists and everyone else who gave our little man the best and helped us teach him to have the biggest smile. We will miss you but look forward to coming back to show off our cuteness at a later date ;-) so the plan is for Lalo to go tomorrow by ambulance - his first taste of Washington winters!
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4 comments:
So happy to hear the big news!!! Also, glad to hear that you guys are feeling better!
This is great news! Sorry you guys were sick, but glad you're on the mend. Best of luck to Lalo in his new (temporary) digs.
This stomach thing has really hit the outside world hard. It's very good that no one has spread it to Lalito.
Good luck on the move. And great that Lalito has had success with the medication changes, etc.
Aunt Kirsten
i am so happy to hear this!!! i;mn sorry i have not been on here in a while... i have been thinking of you. what is the name of the hospital?> love you guys!!! katie
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