Usually mom & dad keep everyone in the loop with posts and pictures, but today it's my turn. I need everyone's help. Tomorrow - 3/31 - is CDH Awareness Day. CDH is still a big part of our daily lives and like most CDH families, we had never really known about CDH until my diagnosis. This defect still only has a 50% survival rate. I want to help change the future of CDH by spreading awareness, so one day research will make this a 100% survival rate and lessen the long-term effects. Here's some ways you can help me do this (I'm only 6 mo. old after all)...
- wear TURQUOISE tomorrow, when someone tells you how fabulous turquoise looks on you (guaranteed!), tell them about CDH. Get some info here.
- Spread the word about CDH to just 1 other person. Imagine how many people we can tell together.
- Donate blood. Babies on ECMO, like I was, receive countless blood and platelet transfusions. I saw that red cross cooler many times a day during my 2 weeks on ECMO. Here's a link to schedule with the American Red Cross.
Thank you all!
Lalito xoxo
2 comments:
Hey, Lalito, what's your "type"?
And, out of curiosity, what is your Mom's "type"?
I'm B+.
Love,
Aunt Kirsten
You got it Little Lo!
Uncle Rhett, Aunt Jill, Katie and Marisa
Post a Comment