Saturday, January 1, 2011

DC

Well we are finally a bit settled into Lalo's new digs in DC. He apparently did fine on the ambulance ride, sleeping most of the way, and only seemed a little frazzled by all the change and commotion. He is a pretty laid back little guy and has been sharing lots of smiles with his new friends. From what we've seen so far, it definitely is a more relaxed environment and they are very focused on rehab therapy. He will have occupational, physical and speech therapy (at least) several times a week and child life services are involved too to help with the normal play side of being a baby. Their focus right from walking in the door is how to make the transition to home smooth. We have gotten education materials on the meds he is on, been shown how to give his meds through his feeding tube, and started the infant CPR training. It is nice to be able to focus and prepare for bringing him home.

It is also super close to Lalo's work - about 10 min - and a little bit closer to home. Distance-wise it is probably not too different, but at Hopkins the garage is always chaotic and not very close to the nicu plus you have to go through the inner harbor. I always had to leave his bed an hour and a half before I had to get to daycare to make sure I would be there on time. The first day here was super busy and I ended up only leaving a half hour before I had to be there...and I made it! That all adds up to a lot more time we get to spend with Little Lo. And the very best part...siblings of all ages are allowed and encouraged to visit! Yesterday we brought Caleb in to meet his brother for the very first time. We got a great reaction - he had a huge smile and said "baby!". All four of us sat and read a book together. It was wonderful for a brief time to not feel guilty for not being with one of them. Pictures to follow...

Sent from my iPhone

4 comments:

Anonymous said...

Wow! Those pix. are wonderful--Happy, happy new year. Mom and DadFrank

Anonymous said...

I love it. It seems like a great place for him as a transition to being home. When he was sick, Hopkins was good. But now that he is marking time to going home, this place can serve as your way-station.

Love,
Aunt Kirsten

Christine said...

It's a difficult situation, Sarah, and you and Lalo are handling everything well. Don't beat yourself up for how you spend your time; you can only be in one place at a time. And obviously, you're a loving mother to both Caleb and Lalo. Glad to hear all the good news--keep it comin'!

Anonymous said...

this is wonderful. my prayers is that you will all be home together soon. you guys have been through so much and have been great parents to both boys. they are so lucky to have you. - katie