In September 2010 we welcomed our second son, who was prenatally diagnosed with CDH - Congenital Diaphragmatic Hernia. This blog has been our way of sharing with the world as our family works to fight this monster of a birth defect.
Wednesday, September 8, 2010
Diagnosed with CDH
Info on our situation from the email I sent out over the summer...Some of you may have already heard, but we wanted to officialy share some news regarding Baby Baca-Asher (due 9/21/10). The baby has been diagnosed with a right-sided CDH (Congenital Diaphragmatic Hernia). We have been under the care of a maternal-fetal specialist for several months, as it was visible fairly early that something was causing the baby's heart to shift out of place. It was originally thought to be a CCAM (Congenital Cystic Adenomatoid Malformation), which is a non-cancerous mass in the lungs. This was fairly easily treatable with surgery at some point in the first year. However, when we went to Children's Hospital to have an MRI July 13th, we were shocked to learn of the new diagnosis. This diagnosis brings a lot of uncertainty with it, but at this point we do know it will definitely require surgery & a stay in the NICU. We will be delivering at Johns Hopkins Hospital, which my doctors' have referred me to as having the best pediatric surgeons & the best NICU equipped to handle a baby with this issue. An added benefit to this is that I will be able to deliver at the same hospital that the baby is being treated at. Please keep baby B-A in your thoughts & prayers.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment