Tuesday, November 9, 2010
Sunday, November 7, 2010
Lalo is still making slow progress. His throwing up continues to be a big issue. At least once over the weekend feeds were stopped for a short time and we are only currently up to 9 cc's. We know that feeding issues are extremely common in cdh babies, but I was secretly hoping Lalo had faced more than his fair share of struggles and that we could skip this one.
He is very close to being completely weaned from his dilaudid drip, hopefully just another day or two. It will be great to take a medication off of his list. Then we can start on some of the others...
Lalo sr. spent all day Saturday with little Lo and had a great time. It was my first day without seeing him, which off course stunk. But I can't complain because Lalo has to go most of the week while he is working. It was wonderful that they got a good chunk of time together. And I got a few things done and had some quality time with Caleb.
Hard to believe how quickly the days and weeks are passing by. Many people have been asking us how much longer Lalo will be in the hospital and we really have no idea. Whenever we push the question, we get lots of "he is in charge", "each baby is different" kind of answers. I would imagine the minimum would be several weeks or a month, but who knows how realistic that is. I'm pretty sure his eating is our ticket out of here, so keep your fingers crossed that this week will bring good things for his tummy!
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Friday, November 5, 2010
Wednesday, November 3, 2010
Chubbs
Lalo is still progressing on his feedings. We are up to 7 cc's an hour and if things are steady with that, they were going to increase to 9 cc's tonight. We'll have to see how that goes - the poor guy is still getting sick frequently. He has a super sensitive gag reflex due to being intubated for so long, having cannulas in his neck, and all of the other things he's been through.
We had out first meeting with occupational therapy today. They will be working with him several times a week (as will physical therapy) to help him developmentally to overcome his lengthy stay in the nicu. One focus will be the gag reflex as babies with similar issues often develop issues with eating because they only have negative associations from the breathing tube, feeding tube and vomiting. It will also be great to have these various departments working with him one on one since he is 7 weeks old today and he needs more stimulation.
Also, mr chubbs latest weigh-in was 10 lbs 10 oz. Pretty good for someone who's never even had a full belly before!
Thank you all for your continued prayers.
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