In September 2010 we welcomed our second son, who was prenatally diagnosed with CDH - Congenital Diaphragmatic Hernia. This blog has been our way of sharing with the world as our family works to fight this monster of a birth defect.
Thursday, August 11, 2011
Neurosurgeon
We had a visit with our neurosurgeon last week. We were recommended by our genecist to see him to just go over a few things and make sure there were no issues. The first question was about a couple of bumps that we have noticed on Lalo's head in the last couple of months (I think we first noticed when he had the reherniation surgery). The second was the way that Lalo's forehead kind of indents on the sides. And the third was how his head is small on the growth charts. The neurosurgeon was okay with everything - the bumps are ridges where the bones meet in the spots where he had surgery. He doesn't expect them to cause him any issues, but we will watch them as he gets older. The indentations appear to be caused by a mild case of craniosynostosis, where one or more of the sutures in the skull fuses too early. For Lalo, he doesn't expect it to be much of an issue since it is a mild case of it and it should improve as he grows. Finally, the size of his head is expected to be smaller due to the injury to the brain and as long as it remains on the same path of growth, there is not an issue. The neurosurgeon did think it would be a good idea to get another MRI of his brain. As he said, it won't change the way we treat him, but since we made some predications of what would happen after the injury, it would be good to see what actually has happened. I think, from my understanding, that the prediction was that the damaged left side of his brain would not have grown and developed. He showed me the MRI and the CT Scan from those early days and how significant it was. We then talked lots about how amazing he is doing now. I was so tempted to bear hug this awesome doctor. My biggest memory of him is the day of Lalo's injury. I think it was close to 10pm that day when he came to the PICU in a suit and pulled us into a room to explain things and get consent for the surgery, which started a few hours later. We were basically told that things were grim and if Lalo had trouble in the operating room, there wouldn't be much we could do. Now look at our little warrior! I asked the doctor if he would have expected Lalo to look so good now & he said no, that the babies always surprise him.
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