GTube

The big news for this week is that we have decided to get Lalo the gtube. This will get the ng tube off of his face and out of his throat. Since he tries daily to take it out on his own and has managed to at least once, we are anxious to have it done. We met with our surgeon this week and he was very reassuring that this is a much more humane way of eating and will hopefully relieve a small portion of his reflux issues since he won't be gagging on the tube anymore and the ng tube kind of takes away some of the natural pressure of the valve in the esophagus.

We have been playing the weight gain roller coaster over the last week or so. We have a nurse come visit twice a week to check in and weigh him. We went a whole week with zero weight gain which was concerning to his pediatrician and us. Babies naturally grow about a 1/2 oz - an oz every day. His throwing up has seemed to get worse since we've gotten home and is frequently projectile. We are struggling to figure out why it got so much worse and how we can fix it and get Lalito on a good path of gaining weight. We have a meeting with a GI specialist at Hopkins this week and we are hoping he may be able to give us some good insight. For now, our surgeon was comfortable with no surgical interventions other than the gtube. In fact, he thought Lalito was such a good size that he didn't believe he is throwing up as much as we say.

We are getting more and more settled in at home. It is an amazing thing not having to go to the hospital everyday. Our days are busier in a way, but much more calm at the same time. Luckily, Lalo is taking some medical leave at the moment so he is able to get to most of the doctors appointments. This week is an especially busy appt week - Monday is the pre-op appt and synagis shot (rsv antibody) at his pediatrician in the morning and the GI visit in baltimore in the afternoon. Tuesday we get his helmet. Wednesday we are hoping he will have surgery. Friday is the pulmonary doctor at Hopkins. We have also packed lots of fun into our weekend, catching up with friends and visiting with some family.

Happy birthday Tommy and Daddio/Grandpa!!

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